The founder of Oxton-based charity Amy & Friends, Jayne Hughes, has been awarded the British Empire Medal (BEM) for services ...

“It can be a lonely world when you’re in a situation like ours, with around the clock care that Sophia needs, but Claire ...

A mum, who saw her daughter die of a rare condition, has been named in the New Year Honours List. Jayne Hughes’ daughter, Amy ...

Jayne established Amy & Friends - a charity supporting children with Cockayne Syndrome and linked DNA repair disorders and their families - ...

When Sophia Flood was a baby, she was constantly sick, and was eventually diagnosed with Cockayne Syndrome, which means she's unlikely to live beyond her teenage years. Following the heartbreaking ...

When Sophia Flood was a baby, she was constantly sick, and was eventually diagnosed with Cockayne Syndrome, which means she is unlikely to ...

FIVE RESIDENTS of Flintshire have been recognised in HM The King's New Year Honours List for 2025. They are among the 58 people from Wales who are receiving honours according to the list published ...

Angelman syndrome is a rare disease that disrupts the normal development and function of cells, particularly in the nervous system, leading to severe developmental delays and learning disabilities.