A mum, who saw her daughter die of a rare condition, has been named in the New Year Honours List. Jayne Hughes’ daughter, Amy ...

Jayne established Amy & Friends - a charity supporting children with Cockayne Syndrome and linked DNA repair disorders and their families - ...

The founder of Oxton-based charity Amy & Friends, Jayne Hughes, has been awarded the British Empire Medal (BEM) for services ...

“It can be a lonely world when you’re in a situation like ours, with around the clock care that Sophia needs, but Claire ...

FIVE RESIDENTS of Flintshire have been recognised in HM The King's New Year Honours List for 2025. They are among the 58 people from Wales who are receiving honours according to the list published ...

When Sophia Flood was a baby, she was constantly sick, and was eventually diagnosed with Cockayne Syndrome, which means she is unlikely to ...

When Sophia Flood was a baby, she was constantly sick, and was eventually diagnosed with Cockayne Syndrome, which means she is unlikely to ...

Hall and Randall Plumbers operate a highly successful plumbing and heating company, which has been established for over forty years.

Angelman syndrome is a rare disease that disrupts the normal development and function of cells, particularly in the nervous system, leading to severe developmental delays and learning disabilities.

But for a small number of children, the infection triggers strange behavior changes known as PANDAS syndrome. PANDAS stands for Pediatric Autoimmune Neuropsychiatric Disorders Associated with ...